About us

Improving Health Outcomes for Sickle Cell Disease in Uganda

Develop a centralized, electronic patient registry for hemoglobinopathy tracking and care management at Mulago National Referral Hospital.

Establish regional SCD standards covering health maintenance, preventive care, screening for complications, and acute management.

Advance SCD-related research through cohort studies and implementation science studies supporting clinical excellence.

Prof. Sarah Kiguli

SPARCo Principal Investigator

At SPARCo Uganda, our commitment is clear — to transform the landscape of sickle cell disease care through research, innovation, and strong partnerships. Sickle cell disease remains a significant public health challenge, but through evidence-based interventions, capacity building, and collaborative action, we can improve outcomes and quality of life for those affected.

Our work focuses not only on advancing scientific knowledge, but also on strengthening clinical systems, training the next generation of researchers, and ensuring that data informs policy and practice. We believe that sustainable impact comes from empowering institutions, supporting young scientists, and working closely with communities.

I am deeply grateful to our partners, funders, healthcare professionals, researchers, students, and the families who continue to inspire this work. Together, we are building a stronger foundation for comprehensive, patient-centered sickle cell care in Uganda and beyond.

Our philosophy

Values that guide us

Capacity Building in Research and Training

We are committed to strengthening local expertise by supporting Master’s students through funding for sickle cell–related research that advances knowledge and improves patient care.

Advancing Doctoral Research for Community Impact

We support PhD scholars conducting high-quality sickle cell research that generates evidence-based solutions and delivers measurable impact to communities.

Knowledge Generation and Dissemination

We promote scientific publishing and knowledge sharing to ensure research findings inform policy, clinical practice, and public health strategies.

Training Trainers and Agents of Change

We invest in developing trainers, healthcare professionals, and community champions who can lead sustainable change in sickle cell prevention, care, and advocacy.

Dr. Rosemary Byanyima

“As policymakers, the Government remains committed to supporting the SPARCo Project to strengthen sickle cell care and improve the lives of patients across Uganda.”

Champion

“As a champion living with sickle cell disease, I want others to know that you can live a full and meaningful life. With proper medical care, regular follow-ups, and the support of doctors, guardians, and family, it is possible to grow, thrive, and reach your goals. Sickle cell disease does not define your future — informed care and strong support make all the difference.”

Uganda Muslim Council

“As faith leaders, we stand in solidarity with families affected by sickle cell disease and fully support the SPARCo Project in promoting compassionate care, awareness, and hope across our communities.”